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Support 650.665.7576 cfri@cfri.org DONATE NOW Toggle navigationMission & History Financial Information Strategic Plan Infection Control Policy Privacy Policy Contact Us About CF Causes Symptoms Diagnosis Treatment CFRI Resources CFRI Resources: Spanish Research Funding Opportunities Research Awardees Research Publications Education & Support Psychosocial Support Programs & Classes CF Wellness Programs National CF Conference CFRI Community Retreats CFRI Community Newsletter CF Community Voices Podcast Series Cystic Fibrosis News Patient Assistance Resources Advocacy Become an Advocate COVID-19 Advocacy Events Voice of the CF Patient Report Events español Give Donate Now Fun and Easy Giving Fundraising Events Research Challenge Planned Giving Non-monetary Donations Cystic Fibrosis Research Institute Over 30,000 in the USA live with a disease that has no cure Help us find one DONATELife with CF is a physical and emotional roller coaster CF Quality of Life program offers needed support SUPPORT PROGRAMSCF can be isolating: You are not alone in your daily fight Meet others at CFRI’s CF Summer Retreat COMMUNITY EVENTSCystic Fibrosis still has no cure CF research is the answer RESEARCHDid you know CF is the most common fatal genetic disease in the U.S.? And the median age of death is 30 years? KNOW MORECF & COVID-19 CFRI recommends that individuals with CF and their families and friends utilize extra precautionary measures READ MOREABOUT CYSTIC FIBROSIS RESEARCH INSTITUTE Mission To be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support. CFRI CFRI is a nonprofit organization that funds innovative CF research and offers education, advocacy and psychosocial support programs to those affected by CF. READ MORE Vision Statement To find a cure for cystic fibrosis while enhancing quality of life for the CF community. WHAT IS CYSTIC FIBROSIS? Cystic fibrosis (CF) is a rare genetic, chronic, progressive disease that affects over 30,000 people in the United States, and over 70,000 people worldwide. While most people associate cystic fibrosis with progressive lung disease, CF impacts the respiratory, digestive, reproductive, and endocrine systems. Once considered a childhood disease, over half of those living with CF in the United States are over the age of 18. While life expectancy for those recently diagnosed has reached the mid-forties, the median age of death remains only thirty years. Progress in research has led to new therapies that can extend and enhance the lives of those with CF, but there is still no cure. LEARN MORE COMMUNITY BLOG Coronavirus and Risk Reduction Be Kind to Yourself: Emotionally Nurturing Yourself During These Stressful Times Age as a Badge of Honor I Am Canadian. Don’t Follow Our Lead on Drug Pricing. What’s It Like to Experience Food Insecurity with CF There is no cure for CF CF is a rare genetic, chronic, progressive disease Progress in research has led to new therapies CFRI Community Newsletter SUBSCRIBE For the fourth consecutive year, CFRI received 4 stars from Charity Navigator, and is recognized as a top-rated charity by Great NonprofitsOverview Mission & History Financial Information Strategic Plan Contact Us Infection Control Policy Privacy Policy ADVOCACY Overview Become an Advocate Advocacy Events ABOUT CF Overview Causes Symptoms Diagnosis Treatment CFRI Resources CFRI Resources: Spanish EVENTS Overview Give Donate Now Fun And Easy Giving Fundraising Events Research Challenge Planned Giving Non Monetary Donations Research Overview Funding Opportunities Research Awardees Research Publications Education & Support Overview Psychosocial Support Programs & Classes Mindfulness-Based Stress Reduction National CF Conference CFRI Community Retreats CFRI Community Newsletter CF Community Voices Podcast Series Info Tel : 855.237.4669 Email : cfri@cfri.org ©Cystic Fibrosis Research Institute, 1999-2021 All Rights Reserved | Privacy Statement | Disclaimer | Powered by...